ABRAM MAYHEM
  • Home
    • About Abe >
      • Abram’s Viral Photo: The Wizard of Awws (Baby Ming) | Abram Mayhem
  • Blog
  • In the News
  • UBE2A Deficiency Syndrome
    • UBE2A Publication List
    • Abram's UBE2A Symptoms and Diagnoses >
      • Abram’s Pineal Cyst Journey: Insights, Updates, and Long-Term Care >
        • MRI Imaging of Pineal Cysts in UBE2A Deficiency
    • Why Genetic Testing
  • Helpful Links
  • Abram's Art

600 Days Seizure-Free

2/16/2017

Comments

 
Picture
This little boy is 600 Days Seizure-Free, today.
He hasn't had an ambulance ride since 2014. He hasn't had an emergency visit since 2015. He hasn't had a long-term hospital stay due to seizures since the spring of 2015.
He's 100% pharmaceutical-free, now. He's walking, running, riding an adaptive trike, doing puzzles, learning zippers and buttons, can put his socks and shoes on with some assistance, is beginning pre-writing strokes and is attending an inclusive pre-school with the help of a 1:1 aid.
Cannabis is Medicine. Please, let the Iowa Legislature do the right thing for Medical Cannabis laws in 2017. Our current bill is repealing July 1 and we need your help to get anything passed this year.
Please. write to your Representative and your Senator and tell them that you support legalizing medical cannabis.

Comments
    Picture

    About Me

    Erin is a green-haired, tattoo-covered mama powered by sarcasm, iced coffee, and the occasional emotional spiral.

    She’s raising an incredible son with a rare genetic condition, advocating with sharp knowledge and a softer heart — because both matter.

    She's trying not to lose her mind in a house that includes her husband, her son, her mother, a team of no less than five workers, and approximately 3,000 daily interruptions.

    She’s got a sixth sense for fake people, a deep love for horror movies, and a soft spot for anyone who’s ever felt like too much and not enough at the same time.

    Erin doesn’t pretend life is perfect. She shows up messy, honest, and real—whether she’s in advocacy mode, snack-fetching mode, or “why is everything a mess” mode.

    ​She’s built of grit, wit, compassion, and just enough rage to get things done.​


    MOST POPULAR BlOG ENTRY

    Picture
    The Isolation
    ​of Special Needs Parenting

      Subscribe!

    Subscribe to Blog

    JOIN US
    ON SOCIAL MEDIA!

    Picture
    Picture

    Archives

    June 2025
    February 2025
    December 2024
    November 2024
    October 2024
    September 2024
    July 2024
    March 2024
    January 2023
    May 2020
    December 2019
    March 2019
    January 2019
    November 2018
    September 2018
    July 2018
    May 2018
    March 2018
    February 2018
    January 2018
    December 2017
    October 2017
    September 2017
    July 2017
    June 2017
    May 2017
    April 2017
    March 2017
    February 2017
    January 2017
    December 2016
    November 2016
    October 2016
    September 2016
    August 2016
    July 2016
    June 2016
    May 2016
    April 2016
    March 2016
    February 2016
    January 2016
    December 2015
    November 2015
    October 2015
    September 2015
    August 2015
    July 2015
    June 2015
    May 2015
    April 2015
    March 2015
    November 2014
    October 2014
    July 2014
    May 2014
    April 2014
    February 2014
    January 2014
    December 2013
    November 2013
    October 2013
    September 2013
    August 2013
    July 2013

    RSS Feed

Proudly powered by Weebly
  • Home
    • About Abe >
      • Abram’s Viral Photo: The Wizard of Awws (Baby Ming) | Abram Mayhem
  • Blog
  • In the News
  • UBE2A Deficiency Syndrome
    • UBE2A Publication List
    • Abram's UBE2A Symptoms and Diagnoses >
      • Abram’s Pineal Cyst Journey: Insights, Updates, and Long-Term Care >
        • MRI Imaging of Pineal Cysts in UBE2A Deficiency
    • Why Genetic Testing
  • Helpful Links
  • Abram's Art

© 2024 Abram Mayhem's Journey. All Rights Reserved.

Stay connected with us on our website or follow our blog for the latest updates on Abram’s journey with UBE2A Deficiency Syndrome and advocacy efforts.

Facebook | Instagram | Twitter