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Abe's Play Dates

7/12/2016

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Yesterday, we had another play date with a great family we met shortly after moving out of Des Moines. It's incredibly hard meeting other parents in "real" life after you have children, let alone after you have a child with special needs! Luckily, I met Sadie at a local restaurant where we exchanged numbers and have been able to get to know one another a little better over the last year.

What I like best about our encounters is the fact that she doesn't feel the need to warn or explain to her children what Abe has going on. They don't treat him any differently than they do each other and he learns so much from them just by watching them and interacting with them.

I love that even though he doesn't have words they don't call him "baby" like other children do. I love that they aren't "warned" about how to act when they do come. These kiddos enjoy spending time over here with him and they have so much fun together.

How lucky are we that he gets three kiddos so close in age and size to come over and play and who live less than 15 minutes away? I felt so lost and alone when I met their mama. She reached out to me and for that I am extremely grateful!

Thanks for being my friend, Sadie. And thanks for sharing your family with Abe. He loves it. 
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    About Me

    Erin is a green-haired, tattoo-covered mama powered by sarcasm, iced coffee, and the occasional emotional spiral.

    She’s raising an incredible son with a rare genetic condition, advocating with sharp knowledge and a softer heart — because both matter.

    She's trying not to lose her mind in a house that includes her husband, her son, her mother, a team of no less than five workers, and approximately 3,000 daily interruptions.

    She’s got a sixth sense for fake people, a deep love for horror movies, and a soft spot for anyone who’s ever felt like too much and not enough at the same time.

    Erin doesn’t pretend life is perfect. She shows up messy, honest, and real—whether she’s in advocacy mode, snack-fetching mode, or “why is everything a mess” mode.

    ​She’s built of grit, wit, compassion, and just enough rage to get things done.​


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  • Home
    • About Abe >
      • Abram’s Viral Photo: The Wizard of Awws (Baby Ming) | Abram Mayhem
  • Blog
  • In the News
  • UBE2A Deficiency Syndrome
    • UBE2A Publication List
    • Abram's UBE2A Symptoms and Diagnoses >
      • Abram’s Pineal Cyst Journey: Insights, Updates, and Long-Term Care >
        • MRI Imaging of Pineal Cysts in UBE2A Deficiency
    • Why Genetic Testing
  • Helpful Links
  • Abram's Art

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