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First Week of Summer is Down!

6/7/2017

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No matter what we have going on, I try to give Abram the best childhood I can in between doctor's appointments and therapies. I want his summers to be filled with lots of sun, fun with friends and family and making those little memories that last a lifetime for him. I've tried to make a "bucket list" of things to do with him this summer and most of them just include fun things we can most likely do the backyard (painting with squirt guns now that his fine motor is up to par as I've been dying to do arts and crafts with him), visiting a fire station and/or arranging visits from the Sheriff Deputy (who is coming for his 5th Birthday!) and mini-road trips to see Gramps n' Nana. Hopefully our summer involves lots of play dates and fun in the sun!

So far we've gotten to go visit my dad and his wife up in NE Iowa which is absolutely beautiful and spent time soaking in the hot tub with Abram, going to a flea market and taking a nice drive along the Mississippi River on a scenic drive.  Other than that, it's been non-stop hanging out in our back yard where Abe's got a a little plastic pool he likes to sit in but we've already had to dump and clean it out numerous times due to "being torpedoed" as my dad calls it (aka - Abram pooped in the pool) or when he got so excited over the massive bubbles we were blowing that he just HAD to throw a potted plant in the pool for good measure right before our friend was coming to swim!

His highlight of his entire summer is of course the crazy swing up at my dad's house that he will soon grow out of. It's just a toddler swing but it hangs from a rope from a tree and goes pretty high/swings 360 degrees and Abram finds it 100% delightful.

We also had a random drive-by of the Weiner Mobile. It literally pulled into our development (which is literally in the middle of nowhere) and the nice man driving it just stopped outside our house! Abram caught a glimpse of that door opening and ran so fast away from the hot dog that I couldn't stop laughing. His dad and I were way more excited about this opportunity than Abram was. But it is something to remember for a long time, that is for sure.

Here are some photos of Abram lately! Enjoy!
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    About Me

    Erin is a green-haired, tattoo-covered mama powered by sarcasm, iced coffee, and the occasional emotional spiral.

    She’s raising an incredible son with a rare genetic condition, advocating with sharp knowledge and a softer heart — because both matter.

    She's trying not to lose her mind in a house that includes her husband, her son, her mother, a team of no less than five workers, and approximately 3,000 daily interruptions.

    She’s got a sixth sense for fake people, a deep love for horror movies, and a soft spot for anyone who’s ever felt like too much and not enough at the same time.

    Erin doesn’t pretend life is perfect. She shows up messy, honest, and real—whether she’s in advocacy mode, snack-fetching mode, or “why is everything a mess” mode.

    ​She’s built of grit, wit, compassion, and just enough rage to get things done.​


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  • Home
    • About Abe >
      • Abram’s Viral Photo: The Wizard of Awws (Baby Ming) | Abram Mayhem
  • Blog
  • In the News
  • UBE2A Deficiency Syndrome
    • UBE2A Publication List
    • Abram's UBE2A Symptoms and Diagnoses >
      • Abram’s Pineal Cyst Journey: Insights, Updates, and Long-Term Care >
        • MRI Imaging of Pineal Cysts in UBE2A Deficiency
    • Why Genetic Testing
  • Helpful Links
  • Abram's Art

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