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Great News from the University of Iowa!

5/17/2017

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Our follow-up with Neurology today went phenomenally. All is good - no seizures - no pharma. In another month it will be TWO YEARS since we started cannabis and changed Abe's life. 

Endocrinology was a SHOCK. Abe was borderline failure to thrive as an infant. His lack of growth, global delays and short stature were a major concern to his Endocrinologist. She even recommended growth hormone injections last year -to which I declined. 

Today.. He is ON THE CURVE. He grew over 4 inches. His height and weight are "normal". NORMAL. 

I have no doubt that cannabis played its part in this part of his health, too. With healing the brain comes so much good - his cortical dysplasia be damned!!

The bad part?! Abe flipped out when the sweet nurse tried to measure his head. Too many EEGs and PTSD makes this kid lose his mind at the sight of a tape measure. In the struggle, she accidently knocked out his loose tooth. (see photo!) 

He swallowed a lot of blood during the whole ordeal and after working himself so badly during the blood draw, he vomited multiple times all over blood lab. It was awful. The nurses took it like champs..... but at least it is the kind of awful I can handle with a little clean up. 

We gotta focus on the positives and that is this: Abe is continuing to receive POSITIVE medical reports since we started cannabis when before - we had nothing but difficult appointments with bad news and worsening medical conditions.

Cannabis is Medicine!

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    About Me

    Erin is a green-haired, tattoo-covered mama powered by sarcasm, iced coffee, and the occasional emotional spiral.

    She’s raising an incredible son with a rare genetic condition, advocating with sharp knowledge and a softer heart — because both matter.

    She's trying not to lose her mind in a house that includes her husband, her son, her mother, a team of no less than five workers, and approximately 3,000 daily interruptions.

    She’s got a sixth sense for fake people, a deep love for horror movies, and a soft spot for anyone who’s ever felt like too much and not enough at the same time.

    Erin doesn’t pretend life is perfect. She shows up messy, honest, and real—whether she’s in advocacy mode, snack-fetching mode, or “why is everything a mess” mode.

    ​She’s built of grit, wit, compassion, and just enough rage to get things done.​


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  • Home
    • About Abe >
      • Abram’s Viral Photo: The Wizard of Awws (Baby Ming) | Abram Mayhem
  • Blog
  • In the News
  • UBE2A Deficiency Syndrome
    • UBE2A Publication List
    • Abram's UBE2A Symptoms and Diagnoses >
      • Abram’s Pineal Cyst Journey: Insights, Updates, and Long-Term Care >
        • MRI Imaging of Pineal Cysts in UBE2A Deficiency
    • Why Genetic Testing
  • Helpful Links
  • Abram's Art

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