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Hope for Abram - a Channel 13 News Exclusive

5/2/2016

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Our family was honored to have the opportunity to tell Abram's story to our local NBC Affiliate, Channel 13 news! You can watch it online and read more about it here. The Reporter, Stephanie Moore spent several hours watching Abram at his therapy and in the comfort of his own home and she did a wonderful job capturing the depth, desperation and happiness of his story.

The text of this story from Channel 13 News is as follows: 
DALLAS CENTER, Iowa — Abram Miller, 3, started suffering seizures when he was just a baby.  At first, they were mild but increased in frequency and severity.
“Right before his first birthday, he started having spells, where he would be just fine then all of a sudden just not be home at all. Things started getting worse, the seizures started happening more often,” said Erin Miller, Abram's mother.
Eventually, doctors diagnosed Abram with a rare seizure disorder and prescribed him medication that has never been tested on anyone under the age of 18.
“In Christmas of 2014, he could say 'mama, papa, cat, up.' And after that drug, it was just gone, and he worked really hard to get those words. So for him to lose them was really sad," Erin said.
It wasn't just his words — Abram lost the ability to walk and even had trouble crawling.
Out of hope and options, the neurologist pulled Erin into a side room and suggested the family go to Colorado to try cannabis oil.
“I didn't really have anything to lose. If it didn't work, it didn't work but it worked and it changed his life," she said.
The results are remarkable. Abram has spent the last year seizure-free. He went from taking 14 syringes full of prescription medication to just one. Soon, Miller hopes to wean her son off the last prescription and have him strictly on cannabis oil.
“I feel like I finally get to see my little boy live a life. Before, he was so miserable and suffering all the time," Erin said.
Cannabis oil has allowed Abram to regain his fine motor skills, his mother said. He’s also back on his feet, walking and playing.
“Before, they told us he wouldn't have the cognitive ability to do any of these things and he's proven so many people wrong. That's what's important because this medicine is life-changing for so many people, and it changed my little boy’s life.”"


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    About Me

    Erin is a green-haired, tattoo-covered mama powered by sarcasm, iced coffee, and the occasional emotional spiral.

    She’s raising an incredible son with a rare genetic condition, advocating with sharp knowledge and a softer heart — because both matter.

    She's trying not to lose her mind in a house that includes her husband, her son, her mother, a team of no less than five workers, and approximately 3,000 daily interruptions.

    She’s got a sixth sense for fake people, a deep love for horror movies, and a soft spot for anyone who’s ever felt like too much and not enough at the same time.

    Erin doesn’t pretend life is perfect. She shows up messy, honest, and real—whether she’s in advocacy mode, snack-fetching mode, or “why is everything a mess” mode.

    ​She’s built of grit, wit, compassion, and just enough rage to get things done.​


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  • Home
    • About Abe >
      • Abram’s Viral Photo: The Wizard of Awws (Baby Ming) | Abram Mayhem
  • Blog
  • In the News
  • UBE2A Deficiency Syndrome
    • UBE2A Publication List
    • Abram's UBE2A Symptoms and Diagnoses >
      • Abram’s Pineal Cyst Journey: Insights, Updates, and Long-Term Care >
        • MRI Imaging of Pineal Cysts in UBE2A Deficiency
    • Why Genetic Testing
  • Helpful Links
  • Abram's Art

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