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The Mighty!

8/23/2016

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If you have a child with special needs, a rare genetic condition or a chronic illness, you probably have already heard of "The Mighty" website and all that they do to share awareness to such things. If you haven't heard of it, I highly suggest you check it out! They have many conditions listed in alphabetical order, so if you have a loved one with a life-changing medical condition - look it up! You might just learn something and gain a new perspective as well!

I have read countless stories and articles within those pages that I could relate. Their website has single-handedly helped me to not feel so alone in our journey of a rare diagnoses in addition to the very real struggle of special needs parenting.

I am honored and thrilled to say that the piece I wrote on Genetic Testing was published on The Mighty! I hope that I can continue to contribute to such a wonderful community of special needs parents, as I've already met several other parents who could relate to what I had written.

Much Love,
Erin

​

You can click on the link below to go right to their page! Wonderful site with everything alphabetically organized by diagnoses/illness. 
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    About Me

    Erin is a green-haired, tattoo-covered mama powered by sarcasm, iced coffee, and the occasional emotional spiral.

    She’s raising an incredible son with a rare genetic condition, advocating with sharp knowledge and a softer heart — because both matter.

    She's trying not to lose her mind in a house that includes her husband, her son, her mother, a team of no less than five workers, and approximately 3,000 daily interruptions.

    She’s got a sixth sense for fake people, a deep love for horror movies, and a soft spot for anyone who’s ever felt like too much and not enough at the same time.

    Erin doesn’t pretend life is perfect. She shows up messy, honest, and real—whether she’s in advocacy mode, snack-fetching mode, or “why is everything a mess” mode.

    ​She’s built of grit, wit, compassion, and just enough rage to get things done.​


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  • Home
    • About Abe >
      • Abram’s Viral Photo: The Wizard of Awws (Baby Ming) | Abram Mayhem
  • Blog
  • In the News
  • UBE2A Deficiency Syndrome
    • UBE2A Publication List
    • Abram's UBE2A Symptoms and Diagnoses >
      • Abram’s Pineal Cyst Journey: Insights, Updates, and Long-Term Care >
        • MRI Imaging of Pineal Cysts in UBE2A Deficiency
    • Why Genetic Testing
  • Helpful Links
  • Abram's Art

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