This site began as a way to keep our friends and family informed about Abram's unique medical journey. Little did we know that his path to diagnosis would lead us into advocacy—not only for medical cannabis in Iowa but also for raising awareness about an extremely rare genetic disorder called UBE2A Deficiency Syndrome.
We’re grateful you’re here and hope you’ll visit again. Sharing our story has brought incredible people into our lives, and we cherish the connections we've made along the way.
If your child has been diagnosed with UBE2A Deficiency Syndrome and you’re seeking support from families on a similar journey, please join our parental support group on Facebook. You are not alone—we’re stronger together.